More than 3 severe pain crises in the last 2 yearsĪcute chest syndrome 2 or more times in the last 2 yearsĨ or more red blood cell transfusions in a yearĬhronic pain lasting longer than 6 months ![]() Doctors might recommend transplant if you had: It’s important to talk with your doctor about whether or not transplant is the best treatment option for you right now. Watch these videos to learn how transplant can cure SCD and other diseases. There are several steps in the blood or marrow transplant process. It can’t reverse organ damage from SCD, but it can stop more damage from happening. ![]() It’s a treatment that takes healthy blood-forming cells from a donor and gives them to you through an intravenous (IV) infusion to replace the unhealthy cells. These treatments will not cure the disease but may help you feel better.Ī blood or marrow transplant (BMT) is the only established cure for SCD. Other options to reduce SCD symptoms include: They can help lower the number of pain crises, but they do not cure SCD. Hydroxyurea, L-glutamine, voxelotor and crizanlizumab-tmca are the only approved medicines for SCD. Please call (650) 502-7028 for appointments and more information.SCD affects each person differently, so there is no “best treatment” for everyone with SCD. We also participate in public health surveillance initiatives with the California Newborn Screening Program and the California Sickle Cell Data Collection Program. We receive referrals through Stanford’s Newborn Screening Program and community doctors. This might include more blood and lab tests, transcranial Doppler ultrasound (TCD), or genetic testing. However, a positive test for abnormal hemoglobin doesn’t immediately mean that a child has sickle cell disease, so further testing is needed. A simple blood test at birth screens for sickle cell by looking for abnormal hemoglobin protein, and every newborn in the state of California is tested through the Newborn Screening Program. Sickle cell disease is often diagnosed at birth or within the first few months of a baby’s life. Both parents must carry a copy of the sickle cell gene for it to affect a child. It is equally experienced by males and females. It’s also slightly more prevalent in people of Latinx descent, occurring in 1 in every 16,300 births. Sickle cell disease affects those of African American descent most often, occurring in about 1 of every 365 births. Who is most susceptible to sickle cell disease? Consistent care can help avoid problematic symptoms. Other symptoms include pain throughout the body, swelling in the hands and feet, a damaged spleen that can lead to frequent infections, possible vision problems, breathing problems, an increased chance for asthma, sleep apnea, and delayed growth. What are the symptoms of sickle cell disease?Īnemia occurs when there are not enough normal red blood cells, causing fatigue. With consistent, quality care, your child can live a full and happy life. These cells can die and stack up, blocking blood flow and causing pain, infection, or fatigue. ![]() The gene causes red blood cells to become misshapen, resembling a sickle. Sickle cell disease, or sickle cell anemia, is a bleeding disorder that’s inherited when both parents carry a mutated copy of a gene. We’re here to support you every step of the way. You’ll also need to take extra effort to protect your child from sicknesses. Your child will need to avoid situations that can trigger a sickle cell crisis, including flying, visiting high altitudes, and getting too cold. However, with consistent care, a healthy lifestyle, and a sharp eye for changes in health, your child can live a quality life like any other child. We know that it’s frightening to learn that your baby has inherited sickle cell disease. Can my child with sickle cell disease live a full, happy life? You can also have your child’s hematologist or primary care doctor reach out to us to coordinate care. We welcome you to call us at (650) 502-7028 and speak with a nurse in our program to get more information. If your child has sickle cell disease, we’re here to help your child live a healthy life and help your family feel informed.
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